A Teenager Known as “Folded Boy” Due to Rare Condition is One Step Closer to Standing Upright After Risky Surgery

Jiang Yanchen, a 19-year-old university student from Beijing, has embarked on a long and challenging journey to regain the ability to stand upright, something many thought impossible for him. Famously known as the “Folded Boy,” Jiang has battled Ankylosing Spondylitis, an autoimmune disease that causes inflammation in the joints and ligaments of the spine, leading to the gradual fusion of bones. Despite the odds, Jiang’s resilience throughout this journey has become a profound source of inspiration for those facing their own challenges in life.

Ankylosing Spondylitis and Jiang’s Struggle

Ankylosing Spondylitis (AS) is a form of arthritis that causes inflammation in the spine’s joints, resulting in pain and restricted movement. For Jiang, this condition started at a young age, and over time, it led to a progressively more hunched posture. Jiang has been unable to stand upright for nearly a decade, with his condition worsening as his neck gradually bent backward until his head nearly touched his back.

Ankylosing Spondylitis is a rare disease that has significantly impacted Jiang Yanchen's life
Ankylosing Spondylitis is a rare disease that has significantly impacted Jiang Yanchen’s life

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Life with Limitations and Daily Struggles

From a young age, Jiang has faced immense challenges in daily life. Standing at just 1 meter tall, he relies on a wheelchair for mobility. His spine’s curvature meant that Jiang couldn’t sit normally, often having to kneel on a chair to read and write. Despite enduring constant pain and difficulty, Jiang never gave up on his dreams. He managed to take his high school entrance exam while lying on a yoga mat, a remarkable achievement that led to his acceptance into Dezhou University. This accomplishment highlighted his extraordinary determination to pursue education despite severe physical limitations.

Even though Jiang faced pain and daily struggles, he continued to make the best of his life. In an interview with People’s Daily, he shared how, initially, his knees would hurt, but over the years, the pain became numb, and he no longer felt it.

A Turning Point in the Journey to Recovery

In May 2023, Jiang’s life took a hopeful turn when he met Dr. Wang Yu, the Chief Physician of Orthopedics at Peking University Hospital. After thorough evaluations and consultations with specialists from various fields, an intricate and high-risk surgical plan was developed.

That same month, Jiang left his hometown in Shandong province to undergo his first surgery in Beijing. His mother, ever supportive, reassured him that after this surgery, he would no longer need a wheelchair. The first surgery successfully repositioned his neck to a normal position, offering a glimmer of hope for his journey toward standing upright again.

In May 2023, Jiang experienced a turning point in his life when he met Dr. Wang Yu
In May 2023, Jiang experienced a turning point in his life when he met Dr. Wang Yu

The Second Surgery and Overcoming New Challenges

The second surgery, which took place on August 15, 2023, presented even greater challenges. With potential risks such as heart failure, the procedure was risky for Jiang. However, with determination and medical expertise, the surgery was a success, bringing his condition from a 180-degree backward fold to a 90-degree position. This improvement allowed Jiang to sit up and engage with others, marking a significant milestone in his recovery.

The second surgery was performed on August 15, 2023
The second surgery was performed on August 15, 2023

Hope for the Future and New Goals

After being discharged from the hospital, Jiang continues his journey with plans for future surgeries to correct the remaining 90-degree bend in his spine. The ultimate goal is to help him stand tall once again. Despite the long road ahead, Jiang maintains a positive outlook. On his 19th birthday, he expressed joy at being able to see people within his line of sight—a simple change that brought him immense happiness.

His mother, reflecting on the moment, viewed it as a new beginning not just for her son, but for their entire family. There is hope that with the upcoming surgeries, Jiang will continue moving forward toward a brighter future.

Jiang and the medical team
Jiang and the medical team

Conclusion: An Inspiring Journey

Jiang Yanchen’s story is a powerful testament to the strength of the human spirit. Despite facing severe health challenges, Jiang never gave up on his dreams. Each step forward in his recovery brings hope to those facing their own struggles. His journey is not only a lesson in perseverance but also an inspiration to all of us in overcoming adversity in life.

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